Huntington's Disease Awareness Week

Posted on August 24, 2016 by Guest Writer
Huntington's Disease Awareness

Huntington’s disease is a rare condition that affects the central nervous system causing disruption to movement, thinking and personality – and sadly has no cure. According to the National Health Service, there are around 12 people per 100,000 in the UK who have the disease, which is inherited through either parent. However, in approximately three per cent of cases there is no family history of the disease.

Originally called Huntington’s chorea after the Greek word for dancing, symptoms can include involuntary movements that look like jerky dancing. But the good news is that help is at hand to those who have the condition, as the Huntington’s Disease Association (HDA) offers information, advice and support to families whose lives are touched by this debilitating disease.

The charity’s awareness week is a chance to raise funds and awareness up and down the length of the country.

Fundraising ideas

On the other hand, if you or someone close to you have seen the effects of this disease first hand, you might want to get involved on a physical level – while having some fun!

So you’ll be pleased to know there are a multitude of ways in which you can do your bit by signing up to a fundraiser on behalf of this popular charity.

Here are just a few fundraising ideas:

  • Adidas Half Marathon
  • Costa Rica Coast to Coast Rainforest Trek
  • Halloween Moonriders
  • Jurassic Coast Trek
  • Land’s End to John O’Groats cycle
  • London to Newcastle cycle
  • London to Paris bike ride
  • Sahara Survival Challenge
  • Skydive
  • Thames Path Challenge
  • The Great North Run
  • Three cities cycle ride
  • Three Peaks Challenge
  • Virgin London Marathon

For a full list of events visit the HDA website or download a fundraising information pack here. You can also get updates from the charity’s Facebook and Twitter pages.

Watch a video on Huntington’s disease on the NHS online.

If you or someone you know has Huntington’s disease and are thinking or travelling, then you might want to talk to us about getting travel insurance. If your doctor has declared you fit enough to travel, then we can offer many types of travel insurance to suit your specific needs.